Current issues, feedback & complaints on public services in Malaysia
IT is heartening to see that the Health Ministry is going all out to reduce and, hopefully, eradicate the incidence of thalassaemia major in the country (”Thalassaemia testing for students” — NST, May 29).
Thalassaemia is a genetic blood disorder.
Besides the prohibitive financial cost of treating sufferers of thalassaemia major, the emotional trauma that the sufferers and their families have to bear is heartbreaking.
I once had to comfort a woman who broke down when relating what her thalassaemia major grandson went through before succumbing to the disease at 18.
I only found out that I am a carrier (thalassaemia minor) by accident when I took a blood test. Fortunately, my spouse is not a carrier.
The ministry’s efforts should be given full support and we ourselves must be proactive about it.
Couples planning to marry must have their blood tested, and if both are found to be thalassaemia minors, they will have to think seriously about having children because the probability of having children with thalassaemia will be high.
Years ago, I was given a T-shirt by the Thalassaemia Association of Malacca, which had these words on it: “Break the grip of thalassaemia on children”.
Through education, support for government efforts by the public and personal sacrifice, I believe we can do that.
So let us play our part to help the ministry achieve its target of zero thalassaemia patients by 2025.
TAM YONG YUEE, Muar
Source: NST – June 2, 2008
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Dr. Muhammad Sadiq Siyal
September 4th, 2008 at 4:01 pm
Dear,
Im Dr. Muhammad Sadiq Siyal
Secreatary
Thalassaemia Care Cerntre
Nawabshah Sindh Pakistan.
Dear Brother, Holy Month Ramzan is Coming,
We have that you and your friends will send your Zakat, Fitra and Donation in the Name of “ALLAH”
I think, you should involve your other friends to support our Thalassaemia Care Centre, We are expecting much from your friends. To run this Centre, with there expenses this will only possible with your Help in the Name of “ALLAH”
Thank you very much to take interest in our Thalassaemia Care Centre Nawabshah.
Thalassaemia Patients Welfare Citizen Community Bored is a Registered CCB Working/striving for the welfare of Thalassaemics (Thalassaemia Patients)
We are treating Thalassaemics FREE OF COST.
Having 350 REGISTERED PATIENTS we are facing problems to fulfill our monthly expenditure.
Your are, therefore with deep heart, requested to HELP US in this noble Cause.
Please treat this letter as a SOS massage from suffering children.
You are also requested to kindly visit the centre and share your kindness and love with these children.
WAITING FOR GENEROUS RESPONSE.
Bio Data Thalassaemia Care Centre Nawabshah.
1. Total Registered Patients 350
2. Total Blood Transfusion (Daily) 25 to 30
3. Daily Blood Donor in Centre 7 to 10
4. Total Blood Donation Camps (Monthly) 4 to 6
5. Total Staff in Centre 11 (Persons)
6. Total Staff Salary 50,000.00
7.Total Monthly Expanses (With Patients Lunch) 2,50,000.00
8.Total Monthly Income (Exchange Bass) 10,000 to 15,000
Bio Data Blood Donation Camps 2007
1.Total Blood Donation Camps 32
2.Total Blood Donate 1388
3.Donor HBS Ag Positive 54
4.Donor HCV Positive 140
Bio Data Blood Donation Camps 2008
5.Total Blood Donation Camps 36
6.Total Blood Donate 2095
7.Donor HBS Ag Positive 72
8.Donor HCV Positive 230
Your Sincerely
Dr. Muhammad Sadiq Siyal
Secretary
Thalassaemia Patients Welfare
Care Centre Nawabshah.
Address:
Munawar Memorial Building
Nawabshah Cooperative Housing Society
Nawabshah Sindh Pakistan.
For Blood Donations Please Contact:
Thalassaemia Care Centre Tel: +092-244366233
Dr, Muhammad Sadique Siyal (Secretary)Mob:+092-3002706891
Mr, Ghulam Nabi Channa (Manger)Mob: +092-3003226689
E-mail: thalassaemia_nshah@yahoo.com
msadiqsial@yahoo.com
msadiqsial@hotmail.com
For Donations through Bank
Bank Code No. 1439
Thalassaemia Bank Account No. 70000026-03
Habib Bank Limited Nawabshah Medical Collage Hospital Branch
Nawabshah Sindh Pakistan.
Dr. Muhammad Sadiq Siyal
September 4th, 2008 at 4:13 pm
dear im wating your reply